Conference program for Adults with CHARGE Syndrome

Sarah, Emma, Lauren at a previous conference

Designed by adults with CHARGE syndrome for adults with CHARGE syndrome, who are actively planning their future.

This program is a closed group (no parents allowed!) and will be facilitated by Dr Kasee Stratton-Gadke.
The program will run on Saturday 10:30am to 5pm and on Sunday 10am to 12noon.

The agenda has been co-designed with adults with CHARGE syndrome and topics will include:

  • Relationships

  • Self-advocacy

  • Challenges and barriers

  • Rights & responsibilities

  • Transition to independence

  • Healthcare in adulthood 

  • Staying safe online

Registering for this program

Register for the full conference ticket, to access this program. Once you have registered, you will be sent a survey to complete. The survey will ask about your topic preferences and give you the opportunity to ask questions you would like answered.